So here goes...
I promise this won't become a 'vent' blog. I plan to share advice, insights, (we all need a PhD in this to manage all the overload of papers we have to fill out!) and a whole lot of awesome and humorous events that take place.
The last few weeks, it seems as though I am sitting and running in and out of so many appointments for my son Ethan - and I will share his story in a future blog; I am meeting other moms and dads that literally are missing out on some really awesome support and financial help that is out there. Knowing there's help available (and trust me when I say - it's not an easy feat to get the help that exists) that gives relief and hope - means so much when you tell a mom - "wait... are you not getting....?? Whoa what? And they had no idea it exists - is heart wrenching! It just makes me feel driven to help others as much as I can. We are all in this together.... it's a special kind of Community.
Some other things... I wish I had documented and kept a journal of all the daily events and accomplishments that Ethan has experienced. I regret not doing that the last 10 years. So, it's a move forward... there's no day like today to start!
Have a blessed Wednesday!
Tip 1: If you aren't receiving some kind of state or government-funded help yet - reach out to your local DFACS department, a social worker at the hospital (CHOA has this resource) or local Church Group. There is help available!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Picture below is Ethan at Robotics @ CHOA (Scottish Rite) walking in the Andago. It's a remote controlled, high-tech, fancy walker that holds his weight and if he should fall - it tugs him back up. We've been doing Robotics for about 3 years now (3 months at a time, twice a week), following his Botox and Phenol leg injections.
